Some people will never get it, and I actually know that no one knows how I feel daily unless you've walked this same path.
When I started on this journey I wasn't sure how much our life would change. I knew that it would be a dramatic change from what we were used to, but there's nothing to prepare you for THIS…
I'll explain… A fellow Trisomy mom, Lori whose son Kingston has a Trisomy 13 recently posted this to her Facebook page. I knew exactly what she meant and how she felt.
Here are some excerpts from that post…she gave me permission to post this. Thank you Lori!
Once Mylah started tolerating sleeping off the vent, I had made up in my mind that she and I would go somewhere. I wasn't sure where that place would be, but I would pack up my baby in the car & I wouldn't feel guilty about it. I had butterflies for sure and then I saw the Facebook post that reassured me that I would be ok. It validated my feelings and it felt so good to know that I wasn't alone in struggling with wanting to feel normal again.